Browsing by Author "Mohua Chakraborty Choudhury"

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    Expansion of India's national child healthcare programme, Rashtriya Bal Swasthya Karyakram (RBSK), for rare disease management : a health policy perspective
    (Orphanet Journal of Rare Diseases, 2023) Pragya Chaube; Arun K. Singh; Mohua Chakraborty Choudhury
    This study explores the utility, expandability, and limitation of one of the important national child healthcare programs, Rashtriya Bal Swasthya Karyakram (RBSK) which translates to the National Child Healthcare Program.
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    Integrating rare disease management in public health programs in India: exploring the potential of National Health Mission
    (Orphanet Journal of Rare Diseases, 2022) Mohua Chakraborty Choudhury; Pragya Chaube
    Rare diseases (RD) are conditions that affect a small number of people and hence do not get the focus on government health priorities in a resource-constrained setting such as India. The National Health Mission (NHM) is one of the crucial programs initiated by the government of India to address the health needs of the under-served. NHM programs can provide a unique epidemiological data repository to strengthen the National Rare Disease Registry. These programs can also play important role in providing a continuum of care for many RDs that need lifelong management. However, existing programs have a limited scope to provide specialized RD-related treatments, which is better served in a more focused system. Thus, considering RDs in the design of the existing programs may help RD management better through prevention, data collection, and providing a continuum of care.